DDRFA

In Elora's honor we have partnered and become a board member of DDRFA - DIPG / DMG Research Funding Alliance. Committed to raise funds for the data, research & cure of this devastating disease. Through this collaboration Elora J. Khan Foundation is dedicated to support life-saving research efforts for children who deserve to live wholesome lives. Just like Elora. 

ABOUT DIPG | DMG
Diffuse Midline Gliomas, including Diffuse Intrinsic Pontine Gliomas, are cancerous brain tumors considered terminal at diagnosis. Generally, at diagnosis, a patient is given less than one year to live. DIPG most typically affects children ages 4 to 12. However, DIPG and DMG can impact children or adults. DIPG/DMG takes the walk, talk, speech, swallow, use of hands and arms, eyesight, and hearing of the person impacted. Usually one side of the body and the opposite side of the head is affected. Symptoms often start with double vision or an eye turning inward, maybe a slight limp or unsteadiness. Over time the symptoms will progress until this cancerous tumor takes the last breath and stops the heart of the person with DIPG/DMG. Standard treatment has not changed for over 60 years. However, working together with committed researchers and providers, we believe a better future for those with DIPG/DMG is within reach.